Mom Enough: One Year Later

Hello fabulous readers!

Quick update: I’m working with a new doctor at refining my supplements now and I’m following a strict adrenal regime that is really working. I’ve had energy for 2 solid weeks now and am feeling optimistic about my recovery.

Many of you have asked me about the plan I’m on, so here’s a link to the site with the book that is giving me back my life. Of course, I started making changes to my diet and life last November that are finally beginning to pay off as well. And yes, I will be writing a book about this entire journey.

I love each of you madly and thank you for my life.

xoxo,
Court

Mother’s Day (redo) last year – not my finest hour.

A year ago, I wrote my most popular post to date, “Bipolar Motherhood: What it Means to be ‘Mom Enough.’ I think it resonated for many reasons, but mostly because it was tackling in a brutally honest way the myth of motherhood.

So much has changed since then. My son is now 20 months old, walking and talking. I have finally found the multifaceted solution to heal my endocrine system and nutritional deficiencies that were causing my mental illness – and I’ve gone so far to question the diagnosis of bipolar in the first place.

I’m off 3 of the 4 psychiatric medications I was taking for years. I eat clean. I still don’t exercise enough. I take a lot of supplements. I pray and meditate and continue my 12-step program.

Today, I am Mom enough, but a few weeks ago, I wasn’t even close.

April was horrific. Just as the Lamictal withdrawals were quickly becoming well beyond anything I could’ve imagined, my stepfather got really sick and had to have open heart surgery. I traveled 2,500 miles to be by his side with energy that came from only God. I reconciled with a family member who disowned me when I was pregnant. The stress was high.

Once I got back home, my son got the stomach flu all over me (and I am an emetophobic so massive panic attacks followed close behind).

I was suicidal most of the month.

It was a Tuesday. I was having a particularly bad run of “I’m a piece of sh*t mother I should just die why did I bother with all those years of therapy since I’m ruining my child’s life anyway” when I called a very safe friend of mine and told her the evil lies my head was telling me.

The next morning, I got this email:

Subject: To Morgans #1 Mom

Hi,

When you start you morning today, I want you to know that you are good enough as a mom. Morgan is healthy and as happy and a little person can be. You gave birth to him and are the perfect mother for him. While there are things you do not do perfectly, you are perfect for him.

He is easily entertained. He is the size of a football player. He has had all his shots. He has hit all his milestones. He has never had juice or candy. He can self soothe. He sleeps through the night. He can sleep in the stroller and can stay sleeping when you transfer him.  You take him to the park and the dog park! These are only a few things I can think off the top of my head first thing in the morning.

It’s really easy to start comparing us to “other” moms. But we don’t know the struggle they go through or don’t go through. You are smart, creative, resourceful. If anything you are more inspiring then the moms that do a million things. You have survived deep addiction and family abuse, you have made it through 14 years of recovery, you made it through a 6 year long misdiagnosis, you are getting your autoimmune disease in check slowly. I think I would have abandoned my kid by then. Seriously. You carry the message of recovery like no one else. You are truly gifted in more ways than you know.

YOU ARE ENOUGH as a mother. Morgan is so lucky to have you and your husband. The 2 of you together make a great team in making Morgan well rounded. And for things you dont know, you have friends and the internet.

Love you

That email makes me happy every time I read it because I’m so lucky to have people in my life who care about me so much – and because it’s true.

The next day, my stepfather died. The rest of the month was very dark. More traveling. More baby sickness upon return. Grief – the grief of losing the best dad I ever had – and all the other stuff that comes along with a death in the family.

But then May came and, like a miracle, I’ve had energy and felt like me again. Maybe my stepfather is doing some magic from above

Last summer, we took my son to meet my stepfather. The trip was so hard. Traveling with a toddler is hard enough, but adding illness to that mix makes it impossible.

My stepfather was so happy that we traveled all that way. That he got to meet his youngest grandchild. And when he passed, I knew that I was daughter enough. The sadness was huge, but there was no regret.

And that’s the measuring stick of enough, I realize now. Regret. I was in therapy for years before I even had the courage to think about becoming a mother because the last thing I ever wanted to do was what was done to me as a child. I would’ve rather robbed myself of becoming a mom than hurt a child.

I did all the work, but no amount of Jungian analysis could’ve prepared me for duct-taping my windows shut in the middle of the night because I had postpartum OCD so bad that I was scared to death that I would somehow – in a horrible moment of knee-jerk reaction madness – accidentally murder my own child.

And the next morning, I’m a Starbucks and some random stranger is telling me to love every second because it’s over before you know it. And all I heard was “you’re not enough, you’re messing it up, you’re doing it wrong, you’re a horrible mother” because I was out of my mind.

And no one understands it unless they’ve been there. Unless they’ve lost their minds.

And the voices of not enough were so loud that when Time Magazine printed my worst fears on their cover, I knew I was a failure and therefore let it completely ruin my first Mother’s Day. I was so insecure about the job I was doing as a mother that I made the day impossible for my husband. There was nothing he could do to prove to me that I wasn’t a horrible mother and damaging our child for life. It was a crappy day full of fighting and tears.

It was so bad, I made him redo it the following Sunday. We went to Polo Lounge, the restaurant in the Beverly Hills Hotel where we had our first date and lunch the day we found out we were having a boy, determined to have a special moment. Or should I say, to force a special moment.

It was even worse than the week before in many ways. We fought more and I was furious. And it was no one’s fault.

And the stupid part is that even with a brain that wasn’t working right, I was and have always been mom enough. I pushed myself harder through the fatigue. I didn’t kill myself when all I wanted to do is die. I hung in when it got impossible and kept going – for my son – so he could have a mother. So he wouldn’t have to live with the stain of suicide and knowing that he was a part of the demise of his own mother.

Today, I am mom enough.

I am wife enough. Friend enough. Daughter enough.

I am enough.

I have enough. Of everything. In every way.

I love my son. I am his mother and I do my best. I take care of myself and him and our home and our doggies to the best of my ability on any given day.

And I know, deep in my heart, that I am the only mother for this little man.

This year, I asked my husband to schedule me a chakra balancing at this little place on Ventura Boulevard super close to our house. It could be a crock-of-crap, but I’ve been curious about it for a while and have had magnificent results with chakra alignments in the past. So magnificent that it made me a believer.

No fancy brunches. No make-up. No fuss.

Because today, I’m enough and I have no regrets.

For My Stepfather

Hello readers!

Please know I love you and have been thinking about you. The Lamictal withdrawals were enough to level me, but combined with severe adrenal fatigue (I’ve since learned the diagnosis is severe) and Hashimoto’s (that won’t optimize until my adrenals repair) and having a bad reaction to hydrocortisone (to help my adrenals prescribed by my now ex-doctor, bad idea and I only blame myself because I’ve never had luck with steroids), it’s shocking I manage to function at all.

But there’s more.

Smack dab in the middle of the worst of the symptoms of all of the above, my strong, hilarious, brave stepfather had emergency open heart surgery on April Fool’s Day. No joke.

God gave me angels to care for my baby and just enough energy to fly across the country to be by his side for almost a week.

He got out of the hospital and was fighting the good fight, but he unexpectedly passed last Thursday night. We buried him yesterday and I’m still shocked that he’s gone. His phone’s been turned off, but I can’t bear to delete him or remove his number from my favorites.

He’ll always be one of my favorites.

I’m sitting in the Atlanta airport with my mom as I type this, beat up, fighting a cold and exhausted beyond belief.

It’s been quite a month.

This blog is for him. More blogs will come – but not as frequently as I wish. I’m on a strict regiment that leaves little time for much besides my husband, son, 12-step program and healing, healing, healing.

I’m going back to basics.

I’m looking at a yearlong recovery where my health will be my first and foremost priority. All else comes after. It has to.

And I’m willing to go to any lengths to recover, just like my first year of sobriety.

And I will recover. Oh yes, I will. And trust me, when I get up-to-snuff, I will never shut up about invisible illness, women’s health and the broken medical system that almost killed me.

I promise you that I will advocate and I will do it LOUDLY. And when I’m told to be quiet, I will advocate even LOUDER. Because if I can save one person out there an ounce of unnecessary suffering or open the mind of one doctor, then all of this will have meaning.

I don’t believe that everything happens for a reason, but I certainly believe finding meaning in what has happened helps us move forward and continue healing.

Until then, in love,
in the quiet spaces,
in the moments of grace,
and always in peace,
Court

. . .

Stepfather seems like a strange name for the man I just lost, but calling him “Dad” never felt right – maybe “Dad” brought up too many confusing flashes of violence and love, alcoholism and fear – or maybe it just didn’t sound right coming out of my mouth.

Maybe it’s not “Dad” that sounded wrong, but “step” that sounded right. Step implies action. We take steps to move forward, up and down, side-to-side.

My stepdad took action when he stepped in as my father. Diagnosed with Rheumatoid Arthritis in his mid-twenties, he was in chronic pain and slept only a few hours a night. He worked long hours to provide for me, my stepbrother and mother. He showed up to all my plays – and there were a lot – and cried when I sang “The Rose” in my Senior Assembly.

Of course, I only know that because my mom told me. We rarely said more than a few words to each other and definitely didn’t openly display affections.

Until the divorce.

It was a confusing and hurtful event. All the siblings were adults when it happened, but in a way that seemed to make it harder. There were loyalties and leanings. There was drama and regression.

And then he moved 2,500 miles away.

I was 25-years-old. He was my stepfather. Technically, we weren’t even related anymore and we were never that close in the first place.

But the strangest thing happened because of another kind of step – actually all 12 of them. I was a little over a year sober when the divorce happened and I was given the opportunity to practice the principles of the steps in my relationship with him.

I didn’t know what to do, so I relied on God to give me the next indicated right action. Not that I was ever a perfect daughter, but I tried. I picked up the phone. I visited.

I’ve learned that service is gratitude in action, so I showed up for our relationship because I was so grateful for him in my life all those years. And grace beyond what I ever could’ve imagined came from taking a few consistent and simple actions.

Over the past 14 years, I’ve gotten to know him so much more than I ever knew him when we were technically related and living under the same roof. We were physically far apart, but emotionally we moved closer and closer toward each other. I’ve gotten to know him in my adult life as another human being on this path complete with frailties, strengths and always with humor.

He gave me away when I got married. It was so emotionally and physically taxing on him, but he was determined to walk me down that aisle. I couldn’t imagine it any other way that day.

He faced the same challenges to be there for me when I got my Master’s Degree, but there he was again.

By the time I had my son, his arthritis had gotten too bad for him to travel. I was so sick after giving birth, I feared I’d never have the strength to travel that far with a baby.

But last August and a few days after his first birthday, my son met his grandfather.

The trip was great. It wouldn’t have been possible without my husband’s help and I’m so grateful for his efforts in making it happen. We had so much fun – golfing, riverboat riding and sightseeing – but my favorite moments were watching my stepfather watching my son with so much love in his eyes, the love that only a grandpa can have for his grandchild.

We didn’t share blood, but we were most definitely related. He always called me his daughter and my son his grandson – because that’s what we were.

I’ll never forget how sad he was the day we left. He hugged me and my husband and said, “this is the nicest thing someone has ever done for me, thank you.”

That was the first and last time he saw my son.

I miss him so much, but I know how lucky I was to have him as my stepdad. I was 8 and seriously damaged when I wound up on his doorstep. His love helped heal the wounds my father made and helped me become the woman, wife and mother I am today and for that, I am forever grateful.

Rest in peace, my sweet stepfather, until we meet again – I love you.

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Curve Ball-ish

There is a solution!

I saw the doctor yesterday and got the results from my 24-hour saliva cortisol test.

Her eyes got very big and she got very excited.

“Thyroid isn’t your main problem. You’re in adrenal fatigue – this is your number one problem.”

What?

Exactly.

This is a lot to process, but is also a happy thing. Solution is a happy thing. In 12-step meetings they say “don’t leave before the miracle.” I’m so grateful I didn’t kill myself or relapse or run away and I stayed on to figure out what the hell has been wrong with me.

So, I’m off to bed. Here are some fun facts about thyroid and adrenal fatigue:

Adrenal fatigue often develops after periods of intense or lengthy physical or emotional stress, when overstimulation of the glands leave them unable to meet your body’s needs.

When the adrenal glands are causing the thyroid gland to malfunction, if a healthcare professional aims their treatment directly at the thyroid gland and ignores the adrenals, there is absolutely no chance of restoring the patient’s health back to normal.

Secondary hypothyroidism is low thyroid function caused by malfunction of another organ system. One of the most frequently overlooked causes is adrenal fatigue. Fortunately, secondary hypothyroidism can be reversed when the underlying root problem (such as adrenal fatigue) is resolved.

References:

http://thyroid.about.com/cs/endocrinology/a/adrenalfatigue.htm

http://www.naturalendocrinesolutions.com/articles/the-link-between-adrenal-fatigue-thyroid-conditions/

http://www.drlam.com/articles/adrenalfatiguevshypothyroidism.asp

Lamictal Brain

My brain feels like it’s going to roll out of my forehead. The pain started at 1pm today. It’s been 15 days since I’ve been completely off of the drug.

I never even liked it. It didn’t work wonderfully for me. The only reason I started was due to the fact that Lithium upset my stomach too much postpartum and after 6 months of acid reflux, I agreed to try Lamictal.

But I had really intense postpartum mania and I needed something to control it. Of course, what I needed was natural desiccated thyroid, but still believing the bipolar diagnosis, Lamictal made perfect sense when the Lithium upset my slowed-down digestion.

I’ve gone on and off Lithium many times. At one point, I took the lowest dose every other day. The withdrawal was never bad.

I’ve withdrawn from Zoloft and that sucked, but it was nothing compared to this one.

And the scary thing is that I’ve been on such a low dose for not even a year and a half.

My neurons are not firing right. I’m ok until about 1pm, then it’s like I can almost hear them tripping on banana peels up there.

Man, the things I’ve put my poor brain through. Not to mention the 2 years I did LSD every weekend in high school.

I don’t want to write, but I don’t want to not write. I forget who’s out there reading. I often wonder if anyone’s reading.

And then I got the email from a good friend who reads my blog and is also a writer and has been through exactly what I’m going through right now and she reminded me that I’m not alone.

My default from growing up in an abusive alcoholic home is truly believing that I’m all alone in the world and I’m unsafe. No one has my back and I need to pretend like I’m ok especially when I’m not because they’ll smell my weakness.

I was always sick as a child. Always. And always pretending not to be.

She reminded me that I choose to live in a loving universe today where I am surrounded by love. And light. And warmth.

I am.
I really am.

I’m not the first person nor the last to go through this. It will pass. I’ve been taking a med for people with epilepsy that constantly is ready to fight electrical storms in the brain. It’s a very strong medicine and it’s good that I’m getting off of it.

I’m lucky. I really am. I will survive this. I will get my analytical brain back.

Today I’m choosing to live in a universe without permanent damage. In a world where healing is possible. On a planet where miracles happen everyday.

And that’s probably a good thing since I have to do my taxes tonight.

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The Beat Goes On

I haven’t been able to write regularly for so many reasons. More reasons than I could’ve ever foreseen, actually.

After getting over my most recent cold – probably the 15th one I’ve caught since Thanksgiving due to the unfortunate pairing of a compromised immune system and a baby in daycare – I realized that I was having major Lamictal withdrawls. Or I should say I realized that my husband was right when he repeated that withdrawals were the main culprit for my most recent demise.

See, I’m not only struggling with trying to get the (not my, I don’t want ownership of any of the diseases that live in my body) Hashimoto’s Thyroiditis under control and the domino Chronic Fatigue as a result of the Hashi being treated with T4 only medication that wasn’t converting correctly in my body and having a baby, I’ve also been trying to get off all the psych meds I’ve been taking for years from having the Hashi’s misdiagnosed with bipolar 1 disorder 7 years ago.

Yay.

All the while trying to hold a marriage together, raise a toddler, stay sober, earn my keep and do the dishes.

Oh, those damned dishes get me every time.

Since December, I have weaned off of Wellbutrin and Lithium without much fanfare. Lamictal was next and then Zoloft will be last. I really didn’t think much of it and most certainly didn’t anticipate adverse reactions, mostly because I had only been taking it for a year and a half and I was on a very low dose.

Zoloft is the one I’ve been scared to wean off of because the only other time I stopped taking it I ended up in a mental hospital. So I’m saving that one for last.

Per my psychiatrist, I followed the following Lamictal weaning schedule:

March 15, 75mg to 50 mg.
March 20, 50mg to 25mg.
March 25, done.

Of course, I didn’t realize that my withdrawal symptoms were getting worse and worse because I had a bad cold and thought that was the culprit of how yucky I felt so I didn’t even think of calling my psychiatrist to slow down the schedule.

By the 25th, my head was pounding and I was dizzy and off balance. I was having these massive nausea attacks – my least favorite feeling in the universe. The smallest multi-tasking stressed me out and overwhelmed me to the point of anguish. My brain wasn’t working right – at all.

And all of this took place during a 2-week 24/7 pilot my husband was working on and 2 huge Jewish Holidays. My son’s daycare is run by Orthodox Jews. They were closed 5 entire working days.

I don’t believe that God doesn’t give us more than we can handle. Not for a second. I can handle very little with debilitating fatigue, let alone a toddler.

I do believe God gave me Care.com so I could spend almost all of my husband’s newly hard earned 24/7 money on babysitters and that’s exactly what I did.

I wanted to throw in the towel. I didn’t know what that looked like so I really was just going to keep trudging through the muck, but I feared I would feel that horrible forever.

My friends were starting to worry and call me a lot to check in on me. My mom read my last blog and got super scared that I was a risk to myself. Let me tell all of you right now, I will not kill myself and am not a suicide risk. I made that promise to myself years ago that I would never leave that legacy for my family – no matter how dark the darkness ever gets. I’ve lost 3 family members to suicide and I fully understand the mark that exit leaves on our loved ones.

I also believe we have to deal with the pain on the other side anyway so I don’t really see suicide as an escape. I see it as more of a lateral move.

By the time the cold was almost gone and my symptoms were not, going back on Lamictal was no longer an option. There’s an increased risk of a dangerous rash after discontinuing the medication and with the way my luck has been lately, well… enough said.

Just when I couldn’t feel worse, life showed up. See, it doesn’t stop just because I feel crappy. I got the text that my stepfather was going to have open heart surgery in 2 days.

I couldn’t even see straight. My husband had to finally find and book my flight for me because my brain couldn’t wrap around it. I literally almost booked the totally wrong times twice.

One of my amazing girlfriends took care of every last baby logistic for me, took care of my baby and drove me to and from LAX. Another girlfriend loaned us her portable crib and took care of the baby almost a whole day. She also turned her entire living room floor into a race track with blue painters tape.

Less than 24-hours later, I was sleeping on an airplane. Then on a layover. Then on another plane to Tennessee to the hospital. I must admit, chronic fatigue comes in handy sometimes. I can sleep anytime, anywhere. It’s the waking up part that’s a doozy.

It was nothing short of a miracle. I was in Tennessee with my stepfather by Easter afternoon. He got through the surgery like a champ. I’ve never seen anything like Cardiac ICU and recovery – it’s not for the faint of heart – oops, probably too literal of a metaphor.

And then, as I was packing to go home, I got an email that my father-in-law had a stroke. Sometimes it’s best not to ask “what’s next?” and instead just hope for the best.

He only had a small stroke and he’s been sternly warned that I would prefer him to stay off my “people I need to worry about” list. He was released from the hospital after a day and night of observation.

As for my stepfather, his road to recovery is going to be a lot longer. He’s going home today, but he has to have back surgery in another 6 weeks.

And as for me, I’m so grateful that despite everything I was able to be there with my stepfather for 5 days. He means the world to me and to get to be of service to him and kiss him and tell him how much I love him was a joy. I can’t imagine losing him and I’m so happy that he’s such a fighter.

And as for my symptoms, they’re still going strong. The headache starts around 2pm now instead of upon awakening and the nausea attacks are less frequent. I feel like sh*t – I’m not going to lie, but I’m feeling a little better as the days go by and I have hope that this won’t last forever.

But my God, there certainly aren’t any promises of smooth sailing out there. Who knows what tomorrow will bring? I’ve stopped asking. It can get a lot better and it can get a lot worse, so all I can really do is be here, now and be grateful for all that I have today – amazing friends, a loving husband, a healthy baby, a messy house and a deep and meaningful relationship with my Creator.

This most recent sh*tstorm showed me that I still get really caught up in the notion of life being fair. The idea that a few big bad things magically put me in the clear for a while. This is an expectation, which is nothing more than a premeditated resentment.

Because what happened when I got home? The baby got the stomach flu!

The beat goes on… And the beat goes…

My belief system keeps evolving and shifting. I’ve been meditating regularly and the Eastern beliefs in reincarnation and Karma resonate strongly with me. It helps the sh*tstorms make sense. I do not know my karma and I need to stop guessing, all I can really do is be here now.

Right now, I’m sitting in a chair. Water is running. I do not feel horrible or wonderful. I’m saving my energy for this afternoon when I pick the baby up from daycare. My husband is on hiatus so I have major extra help now which is such a blessing.

The storm will blow. Or not. But I can be ok inside. I can always have peace – unshakable peace – deep within. I don’t have to live in fear. That’s a choice. I don’t have to live in the past or the future. I can live in today because it’s all I have.

The past 2 years have been so hard, so chaotic and dramatic, that I really was attached to the expectation that I would live happily ever after. That I’d get my health back and ride a white horse into the sunset of my fabulous life.

And that may happen. And it may not. But it doesn’t matter. I may get hit by a bus when I finish this post, but it doesn’t matter.

The only thing that matters is deep, deep within and knowing that I am not my tragedies or triumphs, but a spiritual being having a human experience.

Be Here, Now

The Text Message Heard ’round My World

Machu gets very concerned when Mommy is depressed.

Machu gets very concerned when Mommy is depressed.

I’ve been sick for 9 days today – 9 is actually my favorite number, but not so much in this case.

I’m conserving my energy as much as possible, as just walking up stairs right now wipes me out. Unless I need to be expending energy taking care of my child or working, I am watching TV or sleeping or meditating or snuggling with my dogs or/and baby – which I’ve found to all be energy generators for me.

Even writing – one of my very favorite things to do – zaps my energy.

The big depression hit on Saturday morning and ever since I’ve been thinking about dying. Or running away. Or giving up – then fantasizing about what that would look like – cocaine? Alcohol? A bed in a dark room I never leave and just sleep and sleep and sleep out the rest of my days because I’m quite sure I could?

A goodbye letter to my family?

And I’m here to tell you this is “insane thinking.” I’m also here to say these are not energy generating thoughts. I know that negative thinking only makes my condition worse – severely.

Unfortunately, self-knowledge doesn’t help me out in moments such as these.

This thinking takes me further and further down the rabbit hole.

Thankfully, I have a few friends I feel comfortable sharing my embarrassing self-pitying thinking with and one of them sent me a text message that somehow broke through my bog of self-centered despair.

I like to call it a loving bitch slap:

I’ve been sitting here researching hashimoto’s and most if the people say it’s a very long road to recovery. About 9 months to 18 months. You have had yourself on massive psych meds for years and you’re coming off that. You’ve revamped your eating completely but that also takes a while to kick in – and at the same time you are coming on to natural thyroid meds. I think you are expecting yourself to recover and feel “good” too quickly. If next April you are still feeling this way I’ll be worried – but for now it’s expected that you’ll catch colds, be tired, need to nap, get headaches…..etc. keep doing what your doing – just because you catch a cold doesn’t mean you should give up and throw in the towel. That’s very black and white thinking. – love you

Ps. Cut your poor body a break. Have some empathy for that overworked, exhausted immune system.